Category Archives: Advocacy

14-Day Blogging Challenge: Day 4

14-Day Blogging Challenge: Day 4

“One Thing About Myself”

What is voice?   Cambridge Dictionary Online expresses the English definition of voice is the sounds that are made when people speak or sing .  Voice can be [the right to] an expression of opinion.  Voice can be an important quality or opinion that someone expressed, or the person who is able to express it.  To voice is to say what you think about a particular subject.

One thing about myself, I hear a voice from within, saying, “Let me out” and I’ve been discovering ways creatively to do just that.  When I was a youngster, around the age that children are, when exploring and learning to speak on telephones, I, and probably like many others, would want to answer the phone.  My parents didn’t have a problem with my answering the phone; however, once when having received a call, the person who called had a problem with my having answered the phone.  A statement was made that “children should be seen and not heard”.  I have often thought of that voice and statement, especially when I’ve refrained from expressing myself.

I would describe myself as having a tendancy toward being introverted.  I found the definition expressed on URban Dictionary interesting to read.  I do tend to be found at home.  I’ve often spent time in libraries and quite places.  I do like to think, and at times, when I’ll say that I’m thinking, my husband will sometimes then say, “Oh boy we’re in for trouble.” I also enjoy spending time by myself.

Furthermore, I delight in socializing and I love talking to my family and friends. In addition, I love communicating and socializing through social media.  So, maybe, I’m not so introverted after all.

While I worked in corporate settings, as a bookkeeper and accounting manager, I mostly worked independently.  I have since discovered, and am grateful, that no longer working in a corporate setting, I have the opportunities to “Let my voice be heard” through my writing and the arts in which I am passionately engaged.

What is one thing you’ll share about yourself?

14-Day Blogging Challenge: Day 3

14-Day Blogging Challenge: Day 3
“My Power Words”
Believe
Courage
Hope
Trust
Honor
Encourage
Inspire
Survivor
Caregiver
Carepartner
Patient
Patience
Sensitivity
Empathy
Connecting
Read
Write
Quiet
Nature
Mountains
Valleys
Heat
Cold
Fire
Ice
Water
Fiber
Thread
Yarn
Fabric
Needles
Quilting
Knitting
Crocheting
Beads
Wire
Tools
Art
Creative
Beauty
Electricity
Energy
Poetry
Narrative
Storytelling
Meditation
Breathe
Mother Earth
Sacred Space
 My question for you: “What are your power words?

14-Day Blogging Challenge: Day 2

14-Day Blogging Challenge: Day 2

“My Greater Purpose and Mission”

 

My greater purpose and mission is to help others through sharing in a love of living life creatively and continuing to learn, no matter whether one is in health or being the survivor of illness.

Please ask yourself: “What is your greater purpose and mission?”

14-Day Blogging Challenge: Day 1

14-Day Blogging Challenge: Day 1

“What I Would Like to be Known For”

My journey begins on this 14-Day Blogging Challenge. Here I am, on Day 1, commitment made.

I am being asked, “What do you want to be known for?

I want to be known as a good Wife, Sister (SibSis), Carepartner, Friend, and Health Advocate.

I want to be known as a writer of narratives and poetry, fiber artist, and author.

I want to be known as a great positive, playful creative force extraordinaire, encouraging and inspiring others to celebrate life.

I want to be known as a good storyteller and tell stories through my photography, quilting, knitting, crochet, beading, and as a creator of art.

Might you also like to share, “What would you like to be known for?”

April Snowdrops

20150326_180208_1In the activities of the day, I might have drifted to a place –

Oh – how – wonderful,

Spring you have arrived,

Seems more nearly than in actuality,

Still a white blanket covers earth,

When the air is crisp,

And smells fresh and clear,

April snowdrops peeking through,

Awakening to this new spring season,

of a nose taking in the fragrant

flowers, and freshly mowed grass.

First Day of Spring 2015

20150320_164309Arriving home today, first day of spring 2015,

after a routine scheduled doctor’s appointment,

looking at the winter landscape,

with feelings of being in awe,

having snowfall on the first day of Spring 2015.

Wondering of the miracles to be seen beneath the blanket of snow.

Yesterday, a landscape having just begun to show,

the signs of springtime’s shining green foliage,

beginning to appear.

Fully absorbed, enjoying the last day of winter,

the bright rays of sunshine,

a day comfortable and safe for strolling outside,

walking, with eager anticipation of more days like this to come.

20150319_161819My vision,

looking toward the vibrant,

beautiful blossoming,

of the red and pink flowering azaelea.

http://www.slate.com/bigideas/why-do-we-feel-awe/essays-and-opinions/dacher-keltner-opinion

I just voted for this Pink Glove Dance Competition video. Check it out!

I just voted for this Pink Glove Dance Competition video. Check it out! White Plains Hospital helping patients, families, and friends confront Cancer with Hope, Knowledge, Heart, and Courage…Please take a moment to watch this Pink Glove Dance…Norman and I had a great day with survivors, caregivers, and the compassionate professionals we’ve gotten to know. Check it out and please vote…

http://youtu.be/gItEB-OtnFQ

 

A Personal Essay on Suicide

A Personal Essay on Suicide – “The Children, They Don’t Get It – The News.”

A friend of mine wrote to me today.  He and his family are vacationing in a one room boathouse on a lake.  He shared that earlier this summer he and his wife told their children it was important to get to know this man, Robin Williams, who the children had not yet seen. During July their family movie to watch was “Awakenings”.  They brought “Dead Poet’s Society” with them on vacation to look at. He wrote “The children, they don’t get it – the news.”

When I read what he wrote to me I thought:

“WHAT-THE-NEWS-DOES-TO – The News”

Hearing of Robin Williams death, his passing from suicide, leaves me feeling wounded deeply and opened once again a very deep wound which has never healed. This wound isn’t supposed to heal.  I wouldn’t want it to heal.  It makes me remember.  It’s a wound that one must learn to live with, that one must ride through the storm and terror of grief.

I know, I have ridden through this storm and terror of grief.  I live with a cut, a tear, wounded and scarred. You see, our nephew also died, having committed suicide. He suffered with and battled depression.  He was very young when his father passed from Hodgkin’s disease. It was shared with us that it was as though Brian’s light went out when his father passed.  We, family, friends, did our best to add light, bring out the bright and brilliant sparks from the beautiful flame which we could sometimes see aglow within him.  Yet, his personal pain went deep to his core.

Robin Williams was not well, he was ill, he had an illness, psychiatric illness, mental illness (which of the two sounds less stigmatizing or not stigmatizing at all?), a symptom of which is depression, of which he was battling.  We’ve learned he was also diagnosed with and in early stages of Parkinson’s.  He was suffering with chronic illness. In desperation, he made a decision, a choice to end his life.  His depression became so deep that he was unable to see that the sun of a new morning would again arise after what was the darkest of nights for him.

For any family left behind it is devastating.  We are the survivors.  We, as survivors, deserve compassion. Robin Williams’s family is no exception to this.  They are survivors, the ones with a new fresh wound, one which will never quite heal.  One which has changed their lives forever, one which hopefully they will learn to live with, albeit difficult and challenging.

I think of my nephew Brian Horowitz every day. Amongst fond memories are those brought back when I see Legos and LEGOLAND, books such as The Wind in the Willows by Kenneth Grahame, and J.J.R. Tolkien’s The Hobbit: or There and Back Again, and Narnia. These were just a few of Brian’s favorites. Rest in Peace, Brian.

My sister-in-law, Diane, you have my love.  I am forever grateful you brought this sweet soul into this world and gave me the opportunity of knowing Brian.  For this I will feel forever blessed.

In memory of Robin Williams, I will be revisiting and watching Robin Williams phenomenally portraying characters in film, and “Mrs. Doughtfire” is one frequently seen with my sister Francine.

RIP, Robin Williams.

May Robin Williams’s family be surrounded with love and light, compassion, caring and support of family and friends.  May they be embraced by our love, all of us who loved and appreciated their beloved.

I send my love and my compassion to his family.

To everyone reading this, you are not alone, there is always someone to reach out to.  If you or someone you know is struggling with depression or suicidal thoughts please seek help.

You can call: The National Suicide Prevention Lifeline                                  at 1-800-273-8255.

You can get through it.  You matter.  You make a difference.

After Surgery as a New Endometrial (Uterine) Cancer Survivor

I am one week out from surgery and feeling great.  This doesn’t mean that I’m going out dancing or doing acrobatics, lol, it means I feel as though I’m having a good recovery and I feel blessed. That fist night after surgery surely is the hardest. The pain is so grueling, the details need not be described, any post surgical patient knows what I’m talking about. I’d had surgery before, as an in-patient, fifty years earlier, and I knew I would tough this first night out,  this body having grown and weathered many seasons.  After I woke up from surgery, I remember seeing Norman (my husband) and a good lifelong family friend of ours who was keeping him company.  I remember speaking with my sister and another good lifelong family friend of ours who was staying with Francine and caring for her.  My husband stayed through the evening to see to it that I was comfortable and that I had what I needed, which was mostly apple juice and water.  I was heavily medicated.  I sent him home to get some rest.  How does one find a comfortable position during that first night, so many things have changed, a mattress that keeps pumping and changing position, and leg pumps to help with circulation. My left and right legs feeling so different from the Multiple Sclerosis, and this heightened sensation of numbness and heaviness in my right leg with the changing pressure of the pumping.  Nurses taking the time to find what would work, and using pillows, and rolling blankets, bringing extra pillows and blankets, to cushion  around my body, head and neck, stomach, waist, back, hips, legs, to help me lean into my side and give me cushioned support, comforting me after the Hysterectomy and with my symptoms from MS. There truly is something very special about those in whose care we are during that time. I am so grateful for the comfort brought to me during all those hours.